Next ACDC meeting, Beatriz Miranda-Galarza on “Approaching personal knowledge through the voice of disabled and people affected by leprosy”, 17 March 2014, 16:00-17:30, 14A20

Dear ACDC fellows,

The upcoming ACDC meeting will be presented by Beatriz Miranda-Galarza (Athens Institute for Research on Innovation and Communication in Health and Life Sciences, Fac. of Earth and Life Sciences, VU). Beatriz is a medical anthropologist and focuses on patient conscientization of the power of personal knowledge and intellect in people with a disability, chronic or terminal disease. Her research in the Stigma Assessment and Reduction of Impact project was conducted in Cirebon, Indonesia, and focused on effects of awareness of personal knowledge as a key to emancipatory action research, as described in the abstract below.

Date: Monday, 17th March 2014
Time: 16:00-17:30
Place: VU Main building 14A20

Please reply to this message if you intend to participate.

“Approaching personal knowledge through the voice of disabled and people affected by leprosy”, Beatriz Miranda-Galarza Athena Institute, VU University Amsterdam, and 17, Institute of Critical Studies, Mexico

Through the voice of disabled people and people affected by leprosy, this presentation underscores transformations that took place in the life of the SARI researcher assistants and lay counsellors, and their respective communities. This transformation is the result of a process of conscientization, as these people became aware of the value of their personal knowledge. A significant factor in this process relates to the newly assumed role of ‘staff’ in the leprosy related Stigma Assessment and Reduction of Impact (SARI) project in Cirebon, Indonesia. Drawing on personal narratives, it will be argued that conscientization of personal knowledge is a catalyst of individual and collective change. I will present factors involved in their awareness process and as well as changes experienced in their lives. Besides, I will address the importance of personal experience and reflection as relevant components of such process. Reflection is given about the significance of exploring personal knowledge in the field of disability to enrich the principles that emancipatory-action research embraces. In doing so, the recognition of disabled people and people affected by leprosy as holders and producers of knowledge is emphasized. I will conclude that deeper research regarding personal knowledge and how its transference could provoke social change is suggested not only in the field of disability and leprosy but in the development field.

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We look forward to seeing you on the 17th,

Yours sincerely,
The ACDC conveners
Bertie Kaal, Joyce Lamerichs,
Nicolina Montesano Montessori, Steve Oswald,
Ida Sabelis and Karen Verduyn

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